PEANUT ALLERGY TREATMENT - INTERNATIONAL PROBLEM with WORLDWIDE INTEREST

Peanut allergies and food allergies are an International concern. They know no borders. 
It's one world  where the effects of living with food allergies cross all boundaries. 
Food allergic individuals and parents of food allergic kids worldwide are desperately seeking help for their children or themselves. 
For more information read my post "Peanut and Food Allergies". 


Since launching my blog last year I have been surprised by the International composition of my audience and their ability to find to my rather obscure blog.
As of today this blog has received visitors from over 67 countries which are listed at the end of this post.
The international scope of interest in peanut allergy and food allergy problems is evidenced by the diverse audience that has read this blog. 

Although I have not fully kept track of every visitor's country,the geographic dispersion of the audience is fascinating.

The audience is from 6 Continents and such diverse cultures as Greenland, Australia, Brazil, China, Germany, Nepal, Nigeria, New Zealand and Qatar. It is an intriguing list.

Thus far the majority of my posts have been about the dreaded peanut allergy. 
Why?  The answer is simple. 
My son Alexander is undergoing treatment for his life-threatening allergy to peanuts.
The new treatment is cutting-edge and very successful thus far. 
Currently Alexander is in the "maintenance phase" of treatment. He is officially "desensitized" to peanuts. 
Alexander ingests 8 peanuts per day (unless he forgets- scary but true). Thus far there are been no reactions or complications. 
Explore my blog to read the entire story. 
It is truly an amazing experience to see my son eat peanuts. Due to the life-threatening nature of his allergy we are used to altering our lives to strictly avoid peanuts. 
Stories abound about the lifestyle changes that must occur in order to survive life with a dangerous food allergy.

So I write this blog to help others with peanut and food allergies and to spread the good news that real treatment is finally available for Peanut, Milk, Egg and Wheat allergies. Click here for more information. 

Yes, access to treatment is currently limited unless people have the determination, time and resources to travel to the few places offering a treatment program or clinical trial. 

Research is ongoing and there are new treatments on the horizon for peanut allergies. Subscribe my email to be notified of future posts.

67 Countries - as of 10/24/11
United States  
Argentina
Armenia
Australia
Austria
Belgium
Bosnia-Herzegovina
Brazil
Canada
Chile
China
Colombia
Croatia
Dominican Republic
Ecuador
Egypt
Finland
France
Germany
Greece
Greenland   (57,564 pop.)
Hong Kong
Hungary
India
Indonesia
Iran
Iraq
Iceland
Ireland
Israel
Japan
Kuwait
Latvia
Lithuania  (newest country on the list)
Malaysia
Mexico
Moldova 
Mozambique
Nepal
Netherlands
New Zealand
Nigeria
Norway
Pakistan
Peru
Philippines
Poland
Quatar
Romania
Russia
Saudi Arabia
Singapore
Slovakia
Slovenia
South Africa
South Korea
Spain
Suriname
Sweden
Switzerland
Taiwan
Thailand
Ukraine
Uruguay
United Arab Emirates
United Kingdom
Vietnam


TOP 10 COUNTRIES- (in order of highest number of page views) are:
United States, Canada, United Kingdom, Australia, Romania, India, Phillippines, Germany, New Zealand and France

Peanut Allergic TEEN to EAT 24 PEANUTS all at once - Big Day!

Today is the "BIG DAY" in our peanut allergy oral desensitization treatment.
There have been many such "vital days" and milestones along the ways.


Click on the names of the following posts to read them. There are many more.....
Peanut Allergy Treatment Day 1
Shucking Peanuts for Alexander's Big Day
Peanut Allergic Teenager Eat First Peanut

Yesterday I dutifully drove to Sprouts Grocery store to pick up a bag of "In-Shell RAW Peanuts" as our peanut supply was dwindling.  I arrived home and began my shelling regimen. These peanut smelled pretty good. 
The brown paper skins were easy to remove from the peanuts. This had not been the case before. Hmmmm?  I checked the package. UGH!
To my unhappy surprise I had purchased "Roasted" in-shell peanuts. 


The last bag of peanuts was "Raw" in-shell peanut but these had been the bane of Alexander's existence the past few weeks because the skins really stuck to these peanuts. 
The time it took Alexander to "ingest each dose",which was already painfully slow, doubled.  
I did not know why until I saw him laboring to remove the skins. 
He asked for more peanuts so I was happy to oblige. I had purchased the raw peanuts at another store so I decided I'd just return to the first place I purchased them. I thought "perhaps there is a difference in brands".

When I discovered I had purchased the wrong peanuts I sent an email Angela Galucci 
at Dr. Wasserman's office. It has been my understanding that roasting changes the peanut protein content slightly. Somehow I was wrong.
Here was her response- "Roasted peanuts are fine. They taste much better and are absolutely fine to dose with.  In fact, we usually recommend the roasted peanuts.  Maybe Alexander will like the taste a little better!"
Okie dokie! Problem solved.


Today Alexander will go to Dr. Wasserman's office for a "peanut challenge".
He will eat 24 Peanuts all at once. 
That is pretty amazing. 
A peanut allergic kid eating 24 peanuts at one sitting. 


This is the end of what I call Phase 1 of our peanut de-sensitization treatment.
The peanut oral desensitization treatment has been a HUGE SUCCESS for my son.
He has experienced NO allergic reactions.
Please pray for today to be another success.


More later....
If this blog has helped you in any way I would love for you to post a Comment below. 
It would be encouraging to us and to others. We have an international audience.
People from 48 countries are reading this blog.  And the list is growing.


Thank you for following Alexander's journey thus far. 

Peanut Allergy Treatment WORKS -Now 24 PEANUTS Per DAY for Alexander

My son's deadly Peanut Allergy is being successfully treated. This is an update on the treatment progress for my peanut allergic son. 
Click here to read "Peanut,Milk,Egg Allergy Treatment Explained."


My teenage son Alexander is being successfully treated for his life-threatening Peanut allergy.
This past Tuesday he received DOSE #18 of his oral immunotherapy treatment.
Since my last post on February 23 regarding this treatment my son's dose has increased 
to 24 PEANUTS PER DAY.
Click here to read "Precise Dose for Peanut Allergy Treatment- Oral Immunotherapy" and click here for "Two Peanuts and Super Bowl"
It is almost impossible to fathom but Alexander is now eating 24 Whole PEANUTS Per DAY.
The dose is divided into a morning dose of 12 peanuts and an evening dose of 12.
The dosing rules state that there must be a 9-15 hour time span between each dose.


When we began the peanut allergy treatment our does was 1/1000th of a whole peanut.
A few weeks ago he reached the milestone dose of 8 Peanuts which is is 2000 mg of peanut protein.  


The oral immunotherapy treatment has progressed very smoothly. Alexander's dose has increased each week barring one incident. 
Alexander has experienced NO ALLERGIC REACTIONS to his treatment!


The chart below outlines his recent progress.
Date Dose     Amount     Frequency     Total Peanuts per 24 Hours
Jan 27          1 Peanut    Twice per day          2
Feb  3           2 Peanuts    Twice per day        4
Feb 10          3 Peanuts    Twice per day        6
Feb 17          4 Peanuts    Twice per day        8


MILESTONE 1
Feb 24          5 Peanuts    Twice per day      10
At this point he was given the option to eat Peanut Butter. 
5 whole peanuts were equivalent to 1 teaspoon of Jif brand Peanut Butter or Santa Cruz brand Organic Peanut Butter. Different brands contain different protein amounts. Dr. Wasserman's staff researched this fact and listed the above mentioned brands as acceptable.
Formula- 
If the label reads: 2T - 8 grams protein, then 1 teaspoon of peanut butter = 5.33 peanuts
If the label reads: 2T - 7 grams protein, then 1 teaspoon of peanut butter = 4.67 peanuts


Mar  7           6 Peanuts    Twice per day      12
Mar 14          7 Peanuts    Twice per day      14


MILESTONE 2
Mar 21         8 Peanuts    Twice per day       16    
This is an important amount about which I will write another post
Next there is a jump in the number of peanuts


Mar 28         10 Peanuts    Twice per day     20
Apr 5           12 Peanuts    Twice per day     24


How much Peanut Butter would 12 peanuts be equivalent to? 
12 peanuts = 1 T of Peanut Butter (give or take a little)


My son is being a very good sport although he does wish he could quit. 
The taste of peanuts is truly repugnant to Alexander. He takes a very very long time to eat his peanut dose. In the mornings he "hems and haws" so longs that we often barely make it to school before the tardy bell rings. Yikes!


You'd think he would get used to the routine or the taste;however, you would be sadly mistaken. It takes ever ounce of willpower for him to choke down these peanuts.
Just think of it this way. 
What food do you truly hate - cannot stand- loathe- choke when you eat?  
Imagine eating that dreaded and hated food twice per day.  Yep- now you get the idea of what it is like.
I am very proud of Alexander. 
I am ever thankful to God for protecting Alexander all these years from a serious peanut allergy reaction and providing a way for healing.


Later this week I will write a post on the next phase of treatment. A big day is upon us.
More later....

Food Allergies Can Be DEADLY- Make A DIFFERENCE During Food Allergy Awareness Week

Food Allergy Awareness Week (FAAW) is coming May 8-14, 2011. There are many things each of us can do to promote awareness of food allergies. Click on the link above to read all about it. 
You can also follow us on twitter http://www.twitter.com/PeanutBlog 


You can have an impact. Request a proclamation from your state governor. Texas is the only state so far to formally recognize FAAW this year. You can "Like" FAAN on Facebook. 
You could contact local media with this press release from FAAN.
There are lots of ideas on their website.  Below is their cute new video for FAAW.
Why is this important to me?
My son has a severe peanut allergy. The good news is he is being TREATED with success using oral immunotherapy. We began treatment in December 2010 and as of this week he is eating 12 peanuts a day. Click here to read an explanation. Also treated are Milk, Egg and Wheat allergies.

Breakthrough Treatment for Peanut Allergies. Oral desensitization. Interview with Dr.Wasserman.

My son is being treated by Dr. Wasserman for his severe peanut allergy. This is not a clinical trial or study. It is real treatment using oral immunotherapy (oral desensitization.)
The treatment began Dec 2,2010. To read about the full day treatment on Day 1 click here.
This breakthrough Treatment is also offered for Milk, Egg & Wheat allergies.

The treatment has been a great success thus far. After only 13 weeks my teenage son Alexander is eating 10 peanuts per day as his current dose under this program. He has had no adverse reactions.
Can you imagine. A peanut allergic child eating this many peanuts!
It is a miracle.

After Alexander completes the initial desensitizing phase and passes a "peanut challenge" he will be on a "maintenance" dose for 3 years (under the current protocol which may change).
My husband has asked me if our sons peanut allergy will be "cured" as a result of this treatment.
Dr.Wasserman does not yet know if the treatment will result in a total "cure".
Until science proves otherwise, I suspect Alexander will be on some form of a "peanut maintenance dose" beyond the required 3 years. This s OK with me. Our family is so thankful Alexander will have a high level of protection from a serious allergic reaction to peanuts.
Why don't we just avoid peanuts?
Peanuts allergies are often serious and accidental ingestion due to cross-contamination with others foods is a constant danger. Peanuts hide, undetected in all sorts of foods.
For a list click here.

Per Dr. Wasserman in a recent interview
"The goal of desensitization is a more normal life, markedly decreasing the risk of a reaction and enhancing normal social development and family life."

When asked if patients can be considered "cured" with the treatment offered by his practice Dallas Allergy Immunology he stated,
"No. I would consider desensitization an ongoing treatment. We don't yet know if this will result in a remission (i.e., that would be when we stop maintenance doses and allow occasional, random exposure to the food)."

Click here to read the full interview. http://www.allergymoms.com is a wonderful website to explore.
Gina Clowes performs a great service in this area.

I want to thank all the researchers,doctors,medical staff snd hospitals who have worked for a cure and treatment for food allergies. Above all I wanted to thank God Almighty.

Precise Dose for Peanut Allergy Treatment- Oral Immunotherapy

Now that Alexander's peanut allergy treatment has progressed he is having his peanut dose increased each week.


Date Dose     Amount     Frequency     Total Peanuts per 24 Hours
Jan 27          1 Peanut    Twice per day         2
Feb  3           2 Peanuts    Twice per day        4
Feb 10          3 Peanuts    Twice per day        6


Feb 17          4 Peanuts    Twice per day       8
Feb 24          5 Peanuts    Twice per day      10


I need to shell more peanuts
Why does Dr. Wasserman required to buy in-shell peanuts and shell them myself?
He is being cautious. Unfortunately, Alexander may be allergic to Almonds so we must avoid possible cross-contamination in processed peanuts.
Click here to see my post "Shucking Peanuts for Alexander's Big Day".  
Alexander's dosing amount is very precise! Each peanut must an an average size peanut. Not too big and not too small. 
To obtain an average sized peanut from an in-shell peanut is hard to accomplish. This morning my son requested I provide new peanuts because only large peanuts remain from the first batch I shelled.
We are so thankful that due to the peanut allergy immunotherapy treatment our son is able to actually Eat Peanuts safely! 
I will happily shell the peanuts for him.
As I set about the task again, I experience the same issue that occurred the last time I shelled peanuts. The first few peanuts split in half. I shell a few more and their size is too large.

In an odd sort of way I now have a Dr. Jekyll and Mr. Hyde relationship with peanuts.
They scare me but I need them. Shelling these peanuts is like panning for gold. 
If a peanut pops out of the shell and falls into the sack of peanut shells then I have to sift through the shells and peanut debris to find the golden nugget, a whole peanut.


Once I dropped a perfect peanut specimen into the sink. Ugh! I thought about saving it. 
I wiped it off carefully but I came to my senses thinking "what has been in that sink?"
Yes, I tossed it into the trash.
So what is my shelling "success rate"? Curious, I decided to calculate the yield from my harvesting of the in-shell peanuts. Here are the details-
1) I shelled in batches of 10 in-shell peanuts. Each peanut containing 2 shelled peanuts for a total possible yield of 20 peanuts per batch.
2) I shelled 7 batches for a total possible yield of 140 peanuts.
3) My harvest averaged 7.28 peanuts that were perfectly whole and average in size 
out of 20. 
4) Rate of success in obtaining "perfect peanuts" only 36%.
At this rate I will be doing a lot of shelling.


I thought perhaps the quality of the in-shell peanuts I purchased was inferior in some way.
The shells are hard to crack, the peanut dust flies everywhere and the peanuts break apart.
At Dr. Wasserman's today I shared my story with another Mom of a peanut allergic child. She tried shelling peanuts. Same issues. Then she bought peanuts from a different source, Albertson's Grocery store in Dallas and the shelling experience was better.
So I will be heading to Albertson's.

After 2 hours of work my "Total Harvest" was only 88 Average Size Whole Peanuts, 
32 unusable Extra Large Peanuts and a Jar Full of Half Peanuts also not useable, or so I thought.

Alexander's dose was recently increased 4 Whole Peanuts per dose for a daily total of 8 Whole Peanuts.  The next dose will be 5 peanuts per dose or 10 total per day.
My peanut supply will not last long.
I have a plan to solve the challenge. I will conduct a science experiment to determine the average weight in grams of an average size shelled peanut.
Watch for that post. The results will save you a lot of time if you need to shell peanuts as part of a peanut allergy treatment program.


I am so thankful that Alexander's peanut allergy treatment is proceeding so well. 

Low-Allergy Peanut Being Developed in United States

Here is a novel approach.  A low-allergy peanut is being developed by the U.S. Department of Agriculture.  Researchers are working to develop a new breed of peanut. The properties 900 different peanut strains of peanuts have been examined as part of the process. Whew! 
Good news. The new peanut is not genetically modified. It is produced through traditional cross-breeding.


Why develop this new low-allergy peanut?
Here is an excerpt from a Time Magazine article-

"Researchers are hopeful that a low allergy peanut could be incorporated into allergy treatment programs aimed at building patients' resistance, and could potentially help eliminate the cross-contamination issues on manufacturing production lines and during food preparation in restaurant kitchens."

Perhaps in a future generation growing up eating "low-allergy peanuts" we would see a reduced incidence of peanut allergy. Who knows?


For people already allergic to peanuts it seems logical that a low-allergy peanut might enable them to consume some low allergy peanut products without a reaction. 
I am not a scientist but these possibilities make common sense to me.


According to the Time article the target for public availability of a low-allergy peanut is 2-5 years. 
I think this is a great idea. I hope it is successful.


The peanut oral desensitization treatment our son Alexander is currently receiving for his peanut allergy is a real breakthrough for those allergic to peanuts.
Currently treatment is offered in only a handful places in the United States.
It is proceeding very well thus far. 


Alexander started treatment on December 12, 2010. He is now consuming 8 peanuts per day as his "dose". His dose increases each week. 
More details are available in other posts on my blog.


Click here to read my post "Peanut Allergy Treatment Day 1"

Click here to read Time Magazine article published in June 2010  "Designing a low-allergy peanut?"
Click here to read an article from BBC Health News on the low-allergy peanut

Peanut Allergic Teenager EATS PEANUT

It's Alexander's "Peanut Day". January 27, 2011. Today my son Alexander, a peanut allergic child, is going to eat 1 entire peanut. 

The peanut must be average size. Not small and not large. We are ready. I have shelled peanuts the night before in preparation for today's visit to the doctor ( click here to read my "Shucking Peanuts" story )."Peanut Day" as we have named it, is an important milestone in the treatment Alexander is receiving at Dallas Allergy Immunology. Why a milestone? We both feel the ability to successfully eat a whole peanut with no adverse reaction is a miracle for a person with a severe peanut allergy. 

7:35 a.m. We enter the car to drive school prior to our appointment at 10:15. Fearful I might forget to place the jar of shelled peanuts in the car, I had done so last night. To my amazement no sooner than the car doors shut to the car Alexander remarks, "do you have peanuts in the car?"  He could smell the peanuts right through a glass jar placed in a bag in the back seat of the car.

10:15 a.m. We arrive for our appointment and follow the normal weekly routine. Alexander fills out a questionnaire detailing his current health.

Next the nurse checks his height, weight and blood pressure. 
A peak flow meter test is conducted. What is a peak flow meter test?  
This test is conducted on Alexander every week and measures a his maximum speed of expiration (his ability to breathe out air.) It measures the airflow through the bronchi and thus the degree of obstruction in the airways. Peak flow readings are higher when patients are well, and lower when the airways are constricted.  I like this quote I found on the internet "a peak flow meter test for asthma is like a thermometer for a fever. Both are tools to help monitor what is going on in your body." 


Alexander does have occasional asthma; however, we did not realize the silent nature of his condition until Alexander took a Pulmonary Function Test last September to measure how well his lungs were functioning in preparation for this treatment. 
His lung function was only 60%.  See my "Roadblocks" post for those details.
Today Alexander had his "personal best" peak flow measurement of 470. Progress!


We are led into the Exam Room 1 our usual room.

The nurse arrives and enters Alexander's health data in the computer.

The nurse asks me to give her a peanut. In this case I have prepared a harvest. She places the jar of peanuts on the desk and a timer next to the jar. 

While we await the arrival of Angela Gallucci, P.A. for Alexander's exam, we prepare for a possible dose of a whole peanut. Alexander has a routine he likes to maintain. Since he really dislikes the taste of the peanut doses, he must have his "pink lemonade chaser" at the ready. I buy a can of pink lemonade in the break room and he is all set.

Pink Lemonade serves as a chaser after each peanut dose to help eliminate the taste

As we wait I ask Alexander what he is feeling. He says, "I don't want to do this". I ask, "Why?" "Because I don't like the taste (pause) but the result will be good." 

I am sure he is a bit nervous although he did not show it.

Ms. Gallucci arrives and reviews Alexander's medical results entered into the computer.

She asks him for details as to why he could not increase his dose last week from the 500 mg capsule to a full peanut. Why the delay? 

He explains, "I had a cold and my stomach was been bothering me. I skipped a dose. The next morning I tried to take my dose. It (the peanut taste) makes me start to gag in the first place so I threw it up". Click here for details on what had to be done.

Angela Gallucci, P.A.

The exam proceeds. Ms. Gallucci says it is very important to establish a baseline in case he has a reaction. (Not very comforting). Thankfully his exam results are great.

Now it is time for the big moment. She presents Alexander with the jar of peanuts and asks him to select one of average size.

He must have felt she was asking him "pick your poison".

Alexander contemplates his selection of a peanut

He carefully selects the winning peanut. Not too big and not too small.

Then Alexander smells the peanut-his disdain for the odor of peanuts is intense

10:47 a.m.- He did it!  Alexander successfully eats his 1st Whole Peanut.

"What do you think?" Ms. Gallucci asks. 

Alexander replies, "It's different."

She asks, "It taste's better than the peanut flour doesn't it?"

Alexander says, "Yes. It's not as strong as the peanut flour."

"Congratulations! There you go!" says Ms. Gallucci smiling.

I hear Alexander gargling with the pink lemonade. I laugh. He smiles. Finally!

Now we wait. We adjourn to the patient observation area for 1 hour. I am required to stay with him the entire time to watch for any signs of a reaction. 

The hour passes. No reaction. Whew!

We depart for school as if nothing important has ever happened. Back to the routine. 

Surreal in a way as this was one of the most important moments in his life.

Later at home I ask Alexander for his thoughts on eating a peanut. Quietly he says ,

"I didn't like it but I can handle it!"  

Alexander's grandfather texts him "how did it go eating your first peanut?". Xander replies, "yuckish, but I'm alive so it's all good."

That says it all. 

People with these types of food allergies live under the pressure of a constant threat. An ominous mostly invisible danger of peanuts lurking in places they cannot see or detect.  Click here to read Where Is the Peanut Hiding?

If you have any questions please feel free to post a comment below and I will be happy to reply. Thanks for joining us on our journey!

Here is an informational link on treatment for Peanut, Milk, Egg and Wheat food allergies, Oral Immunotherapy Overview at Dallas Allergy Immunology

Share your food allergies stories. Email your stories to salt.light.truth@gmail.com and I will post them on the blog.  There is a world out there waiting for help or encouragement.