01 December 2010


Roadblocks. Dictionary.com defines "roadblocks" as "an action, condition, etc., that obstructs progress toward an objective:"

Objective-Desensitize our son to peanuts. Not a simple task.
Having only found out in mid-August this was possible I have been on a fast track mission.
I immediately scheduled Alexander to start in September.

Roadblock #1-
We were all set and arrived for our initial medical visit with Dr. Wasserman at Dallas Allergy Immunology.
A few days later we were scheduled to begin Peanut Oral Immunotherapy Day 1
- yet this was not to be.

During our med checkup the nurse administered a PFT or Pulmonary Function Test
to measure how well Alexander's lungs are working.
Pulmonary Function testing measures the function of lung capacity and lung and chest wall mechanics to determine whether or not the patient has a lung problem.
The patient blows air into a measuring device blowing out as much as they can, then inhales as deeply as possible. This is repeated 3 or more times. The goal is to get a reproducible result that is consistent

The nurse kept asking our son to try harder. "Hmmm, try again Alexander".
I was blissfully unaware that there might be a problem.
At one point she thought perhaps her machine was malfunctioning.
To our horror (and the doctors surprise) Alexander's PFT revealed his lungs were functioning at 60%.  An "abnormal result" per the doctor. 
I felt like a bad Mom. Why didn't I detect this health issue? How could our son perform well in sports and school with such a low level of lung function?  
I just think Alexander got used to the way he "was".  He had adjusted.  This was "his normal". Thank goodness we found out.

So the peanut program was off.

Alexander embarked on a protocol to increase his lung function. He does have mild asthma or so we thought.
Obviously his asthma was hiding in a more silent way than wheezing etc.

In the end we were thankful for this "roadblock" as it revealed a serious health issue of which we were unaware.

Leave it to a teenager to be able to play sports, attend school and live life with,
to quote Dr. Wasserman "an unacceptable level of disability"
Who knew.

(We are so thankful for the advances and breakthroughs in medical science that allow such a program to now be offered by a few doctors.)

So now what?

1 comment:

deb allen said...

Julie, Glad this roadblock led to better health for Xander. He's a great kid! forwarded your email to susan sullivan. blessings, deb allen